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Creepy and atmospheric, evocative of Stephen King's classic Pet Sematary, The Migration is a story of sisterhood, transformation, and the limitations of love, from a thrilling new voice in Canadian fiction. When I was younger I didn't know a thing about death. I thought it meant stillness, a body gone limp. A marionette with its strings cut. Death was like a long vacation – a going away. Storms and flooding are worsening around the world, and a mysterious immune disorder has begun to afflict the young. Sophie Perella is about to begin her senior year of high school in Toronto when her little sister, Kira, is diagnosed. Their parents' marriage falters under the strain, and Sophie's mother takes the girls to Oxford, England, to live with their Aunt Irene. An Oxford University professor and historical epidemiologist obsessed with relics of the Black Death, Irene works with a centre that specializes in treating people with the illness. She is a friend to Sophie, and offers a window into a strange and ancient history of human plague and recovery. Sophie just wants to understand what's happening now; but as mortality rates climb, and reports emerge of bodily tremors in the deceased, it becomes clear there is nothing normal about this condition – and that the dead aren't staying dead. When Kira succumbs, Sophie faces an unimaginable choice: let go of the sister she knows, or take action to embrace something terrifying and new. Tender and chilling, unsettling and hopeful, The Migration is a story of a young woman's dawning awareness of mortality and the power of the human heart to thrive in cataclysmic circumstances.
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BEFORE
ONE
Chapter 1
Chapter 2
Chapter 3
Chapter 4
Chapter 5
Chapter 6
Chapter 7
Chapter 8
Chapter 9
Chapter 10
Chapter 11
Chapter 12
Chapter 13
Chapter 14
Chapter 15
TWO
Chapter 16
Chapter 17
Chapter 18
Chapter 19
Chapter 20
Chapter 21
Chapter 22
Chapter 23
Chapter 24
THREE
Chapter 25
Chapter 26
Chapter 27
Chapter 28
Chapter 29
Chapter 30
Chapter 31
Chapter 32
Chapter 33
Chapter 34
Chapter 35
Chapter 36
Chapter 37
Chapter 38
Chapter 39
Chapter 40
AFTER
ACKNOWLEDGEMENTS
ABOUT THE AUTHOR
PRAISE FOR THE MIGRATION
“Intelligent, dark, wildly inventive, The Migration does more than put a new twist on the apocalyptic outbreak novel. It dares to be full of heart and full of difficult, defiant hope.”
PAUL TREMBLAY, AUTHOR OF THE CABIN AT THE END OF THE WORLD
“This beautifully written fictional blend of biology, history, and the human heart is a clear-eyed, clean-limbed parable of change – a blazing emblem of the transcendent power of hope.”
NICOLA GRIFFITH, AUTHOR OF THE LIGHT OF THE WORLD TRILOGY
“A dark fable that somehow feels both timeless and urgently topical.”
M.R. CAREY, AUTHOR OF THE GIRL WITH ALL THE GIFTS
PRAISE FOR GIFTS FOR THE ONE WHO COMES AFTER
“Helen Marshall is one of my favorite living writers. Her elegant, grotesque stories are best encountered like this, gathered together in a book and in conversation with each other; only then can you appreciate the staggering variety of her imagination. This is life, in all its beauty and sorrow.”
NATHAN BALLINGRUD, AUTHOR OF NORTH AMERICAN LAKE MONSTERS
“In turns chilling, heart-wrenching and uplifting. Marshall has a way with words that makes even the most peculiar seem possible.”
KAARON WARREN, AWARD-WINNING AUTHOR OF THROUGH SPLINTERED WALLS
PRAISE FOR HAIR SIDE, FLESH SIDE
“Sometimes a book comes along that is so original, so vibrantly alive, so beautifully imagined and so much a law unto itself that the only comment or advice a reviewer can offer is to say: go read it.”
NINA ALLAN, AUTHOR OF THE DOLLMAKER
“Stories subtle and unsettling: Helen Marshall clothes the uncanny in new flesh and then makes it bleed.”
KELLY LINK, AUTHOR OF PRETTY MONSTERS AND STRANGER THINGS HAPPEN
The Migration
Print edition ISBN: 9781789091342
E-book edition ISBN: 9781789091359
Published by Titan Books
A division of Titan Publishing Group Ltd
144 Southwark Street, London SE1 0UP
www.titanbooks.com
First Titan edition: March 2019
10 9 8 7 6 5 4 3 2 1
This is a work of fiction. Names, characters, places, and incidents either are the product of the author’s imagination or are used fictitiously, and any resemblance to actual persons, living or dead, business establishments, events, or locales is entirely coincidental. The publisher does not have any control over and does not assume any responsibility for author or third-party websites or their content.
Copyright © 2019 Helen Marshall. All rights reserved.
No part of this publication may be reproduced, stored in a retrieval system, or transmitted, in any form or by any means without the prior written permission of the publisher, nor be otherwise circulated in any form of binding or cover other than that in which it is published and without a similar condition being imposed on the subsequent purchaser.
For Laura.
For a while now, Duck had had a feeling.
“Who are you? What are you up to, creeping along behind me?”
“Good,” said Death, “you finally noticed me.”
Wolf Erlbruch, Duck, Death and the Tulip
When I was younger, I used to play dead.
That was back before I knew what dead meant—what it really meant. But when you’re a kid you play at things you don’t understand. You play doctor. You play house. At ten I didn’t know a thing about death. I thought it meant stillness, a body gone limp. A marionette with its strings cut. Death was like a long vacation—a going away.
Mom was pregnant with Kira when my golden retriever, Knick-Knack, got hit by a Buick speeding down Dupont Street. I was six years old, in first grade, still getting used to whole days away from home. Afterward Mom said it was lucky it happened on a school day, lucky I wasn’t around.
Lucky, she said, but it wasn’t. Knick-Knack was my responsibility. There had been long talks before we got him, Dad on his knees, eye-level, saying: “I know you want him, Feef, but he’s a living thing. You’re going to have to take care of him.” And so for two months I had walked Knick-Knack around the block, Mom holding my hand, me holding the leash. I brushed his coat, wiped thick black gunk from his eyes, and slid my hand into the silky white curls that covered his belly. I let him slink onto my bed, his head low, when the crash of thunder left him shaking.
But even when Mom sat me down at the kitchen table with a glass of water to tell me what had happened, her round belly pressing against her cotton dress and me in my navy Hudson College jacket and tie, knee-high socks rolled down to my ankles because it was a warm September and my legs got so itchy in the heat, I still didn’t really understand. What it meant for something to die. Dad never cried much, and the day Knick-Knack died, he was true to form, no waterworks. He’s a tough guy, Dad is, poker-faced. But he kept rubbing his sleeve against his chin. His gaze wandered toward the half-empty dog bowl, the leash hanging from a hook next to the door. I don’t know if he hugged me—maybe he did.
By the time I was older, I understood more of the way the world worked, but it still wasn’t real dead I was playing at. It was something else. Something mysterious and deliciously terrifying. Like kissing a boy for the first time.
This is what I remember about the last time I played: late summer, the morning thick with humidity. A storm was coming and the air had that eerie electrical charge that made the hairs on the back of your arm stand up. Murky blue light streamed through the filter of my curtain.
The house on Dupont was old but gorgeous, a beautiful, nineteenth-century bay-and-gable with two-and-a-half stories of red brick. A bedroom each for Kira and me, mine in the attic where the steep roof came to a point above me. Skeleton beams all musty and sweet-smelling.
I pulled up the covers snugly around my neck, halfway in and out of sleep. The grandfather clock chimed from downstairs. Bong, bong, bong. Back then the chiming was a part of what it meant to be home. I loved listening to it in the morning. Counting out the hours until everyone else came awake, thumbing through the books Aunt Irene had sent me from England where she lived now. The Ladybird Book of British History, all those complicated family squabbles spilling into death, the rise and fall of the nation. A complete set of Susan Cooper’s The Dark Is Rising series, which must have come from a used bookstore because some other girl had scrawled her name on the inside covers. I loved those stories for their strangeness. They offered a vision of somewhere else, the past opening up like a fairy tale, filled with wondrous happenings, signs and portents.
But that morning I wasn’t reading. My eyes were shut, my breath shallow. “I’m dead,” I whispered to myself. Outside the window grackles and robins and chickadees hummed above the traffic sounds of the Annex waking up. They felt so close, like they were nesting in the attic with me. The air was full of light, movement, the anticipation of things to come.
And then I heard Kira, three years old, toddling on her pudgy legs. She opened my bedroom door a crack. “Sleeping, Soff?” she asked. I didn’t answer, not right away. I listened to her feet padding across the carpet, waited to feel her finger hovering right above my forehead. And then, like a butterfly landing, the nail scraping gently between my eyebrows.
“No, Kiki, I’m playing dead.”
Kira was seven years younger than me, Mom and Dad’s darling—their stopgap measure against a divorce that loomed on the horizon even back then. Kira didn’t fix things but she bought us all time together. Time for me to grow up. It wasn’t Kira’s fault that she couldn’t build a bridge between my parents. She was beloved regardless.
I felt the bedsprings give way as she climbed up and slid her feet beneath the covers. She curled into me and whispered into my ear so that the little hairs moved: “I gonna play dead too, Soff.”
I couldn’t help smiling, my lips twitching though they weren’t supposed to. Kira’s hair was a cloud of velvety down against my cheek. She smelled of milk and soap. She snuggled up, warm like a hot water bottle, and placed her ear against my ribcage. I tried to slow my breathing but I knew my heart was still beating a loud thumpa-thumpa-thumpa.
“Soff, am I dead?”
“No, Kiki-bird, the dead don’t talk.”
“Why?”
“Because they can’t breathe anymore. You need air to talk.”
“Oh.” She thought. “Like fish?”
“Not like fish.”
“Last night, Soff, um, I was an octopus. We were underwater and everything was blue. You were a fish, and Daddy was a fish, but I didn’t eat any of you.” She brought her palms up to her face to hide her giggles.
“I’m glad you didn’t eat us.”
“I wouldn’t eat you!”
Her knees tucked into my side. Her toenails touching my thigh through the thin fabric of the pyjamas. “What’s being dead like?” she asked me.
“I don’t really know, Kiki.”
“I play too,” she whispered.
And we lay together, side by side. My breath went in and her head rose gently. It was the first time I let Kira play dead with me, and somehow it made things different. I’d been imagining a kind of passage, crawling through darkness into a very bright light where everything was new and beautiful. But with Kira beside me all I could think of was Knick-Knack’s empty bowl, the hole in our lives he had left behind.
I remember how Kira looked that morning. Her long eyelashes and her clear blue eyes hovering on the edge of grey. A smattering of freckles around her nose. Her face so like my own, but smaller, rounded in baby fat. I didn’t want her to play dead with me.
“Everything born will pass away,” Mom had told me when Knick-Knack died. “Sometimes it’s sad, and sometimes it’s scary but that’s just the way the world works.” It frightened me to think that everything I knew would one day be gone. I didn’t want to see Kira as still as that so I ran my fingers over the ticklish bit of her tummy until she squirmed. “Read me a story, Soff,” she begged when I finally let her go.
***
I miss the house in Toronto. I miss how my life was before everything changed.
Last August—just before the start of my senior year—Kira caught the chickenpox. Half her friends had it but she was the only one left dizzy. The light from the window bothered her. Her hands shook when she tried to turn the page of her book. A week later she collapsed.
The doctor at the intensive care unit said she’d had an episode—that was what he called it. He was handsome in a craggy-faced way, the hair at his temples threaded with grey. In a calm voice he told us her immune system had gone into overdrive and was attacking her brain. Kira stayed in the hospital for weeks. After they released her she was prone to bursts of temper, violent fits. She would start to cry for no reason.
There were more tests. Protein electrophoresis. Something to do with her cerebrospinal fluid. They didn’t know what the results meant. Then two of her friends developed the same symptoms. The school year resumed with a strange air of dread and quiet, everyone glassy-eyed, some wearing face masks, others wiping their hands again and again with antimicrobial gels. But Kira never went back.
Mrs. Burnett told me in one of the counselling sessions Mom recommended that sometimes a stressful event can bring a family together. The shock jolts you out of bad patterns. But it hasn’t been like that for us. When Mom said we were going to live with Aunt Irene, a professor in the Faculty of History, for a while in Oxford where there were better doctors, I knew Dad wouldn’t be coming. They both said it was temporary but I guessed that was only for Kira’s sake. Mom had always been there for us while Dad was away at the office. He had been more of a spectator to our lives. He’d make special appearances on the weekends, serve us breakfast, take us to the zoo once in a while. I’m not surprised he couldn’t take it.
Lately I’ve been telling myself stories about our life in Toronto, trying to fix my memories in place. It’s not easy though. Memory is a tricky thing. It isn’t a ruler, a hard, straight line for measuring the past, the passage of days, months, years. Memory doesn’t work the way my old grade school history books do. It isn’t neat and tidy. It’s more like murmurs, voices whispering in the darkness. Aunt Irene told me that was how the monks used to remember things. They would whisper the words to themselves over and over again, fixing images, sentences, whole histories in their minds so they wouldn’t be forgotten. Memor. Murmure. The meanings of the words are intertwined.
A long time ago I used to play dead. Back then I wanted to keep death near me, to imagine what it might be like. Not Death with the robes black as midnight carrying a mirror-bright scythe. Not the death in monster stories, a hand that grabs you in the night. But the feeling of rest after a long journey.
But ever since Kira got sick I’ve been thinking about things differently. Death is a doorway and I don’t want to know what’s on the other side.
The powers of creation come into violent collision; the sultry dryness of the atmosphere; the subterraneous thunders; the mist of overflowing waters, are the harbingers of destruction. Nature is not satisfied with the ordinary alterations of life and death, and the destroying angel waves over man and beast his flaming sword.
Justus Friedrich Carl Hecker, “General Observations,”The Black Death in the Fourteenth Century
The episodes always begin the same way, with a strange look in Kira’s eyes and that twist of her mouth. Everyone says they’re a symptom of her condition, an intermittent twinge of paralysis. “Watch for changes,” Mom said, “but don’t be afraid. Just write it down, record everything.”
It’s early January now, a month since we arrived in England. Christmas was a blur of torn paper and scraps of twirled ribbon. Gifts grabbed last-minute from Oxfam to replace things we left behind.
And now this. Aunt Irene has driven us out to Bunkers Hill, a little nothing stretch of road twenty minutes north of where we live. Kira’s wearing oversized rubber boots, the thinness of her body hidden by a waterproof jacket, her small hands in ratty purple mittens. She trudges gracelessly ahead of us on the opposite side of the road. It’s just the three of us today, Mom absent again because of another meeting with the specialists at the Centre where she’s been taking Kira for treatment. When she left this morning I could tell she wasn’t expecting good news.
So we’re still doing our best at make-believe. Aunt Irene suggested a trip to the countryside, and here we are—just outside Oxford, a place I’d only heard about in stories. I’m surrounded by a tangle of green, gappy hedgerows of hawthorn and blackberry scrub. My aunt has been pointing out features of the new landscape to us: early blooming irises, nettle husks that still sting if you brush them with bare hands, jack snipes, chaffinches, all the other birds I don’t recognize yet. The air is milder than it would be back in Toronto this time of year, the wind more like breath. Flowers in January.
On the right is a row of terrace houses, most of them showing signs of abandonment. In front of me an inflatable snowman lists to the side, sagging and dingy. A walnut tree has dropped a branch as thick as my wrist into a tangle of clothes line. Just before Christmas the River Cherwell broke its banks and flooded this area, prompting a temporary evacuation. The water has drained into ditches and culverts but most of the families still haven’t come back. Maybe they never will.
Storms have been worsening everywhere. In the airport before we left Mom couldn’t tear her eyes away from the monitors, watching the presenters go on and on about the devastation. All over England, rivers have been breaking their banks, or trying to, only held in check by levees and diversion canals. Whole villages in the south have vanished and in Wales the flooding has stripped away the peat, leaving behind ancient animal bones—bears, red deer and aurochs, things that have been extinct for hundreds of years.
“Do you really think it’ll be better for us in England?” I’d wanted to know.
“It’s for your sister, Feef,” she’d said tiredly. “Your aunt said they’ll be able to help her. And it’s only for a little while.”
Kira coughs hoarsely into her fist, another sign of trouble, and her medical ID bracelet jingles. She showed it off like it was a charm bracelet when her clinician first gave it to her, twisting it this way and that in the light. Now she usually keeps it hidden. KIRA PERELLA – JUVENILE IDIOPATHIC IMMUNODEFICIENCY SYNDROME.
“Should we go back?” Aunt Irene asks. There’s a muscle over her left eye that starts to jump when she’s worried. Mom has the same twitch.
I shake my head, watching Kira. “Let’s wait.”
Kira plods along the road, stiff-kneed, ignoring us. She sets one foot in front of the other, walking an imaginary tightrope, toe pointed. Then she points to her right, squinting into the distance. “What’s that?”
Through the tangle of hedges and brown brambles I see what caught Kira’s attention. The silhouette of a tower, at least a hundred feet tall, jutting into the sky. “Well spotted,” Aunt Irene says, smiling. “That’s the old Cherwell cement works. It’s been empty for a good while now. That was the chimney, I think? There used to be all sorts of other machinery around it, and flues for separating the hot gases from the kilns. You can just see the quarry lake from here. I imagine it’s drenched down there right now. I used to…” She shades her eyes with her hands. “There was a man I knew who worked at that site, a quarry engineer who sometimes did freelance work assessing dig sites for the School of Archaeology. We went for walks around here.”
A trace of emotion crosses her face but I don’t say anything. I always used to ask Mom about her life before I was born, old boyfriends, how things were when she was my age. Not so much now.
Before Kira got sick all I could talk about was university. I spent late nights at Jaina Heymann’s place, she and I flipping through course catalogues together, looking at media studies or English, maybe journalism. It all seemed within easy reach. Now there’s a painful squeeze in my chest when I think about how my future was supposed to be. Mom’s trawling for a sixth form college here that will take me at short notice. A whole new system with A-level exams in the late spring I’ll need to pass.
I take a breath and let it out slowly but the ache is still there.
“I thought it was, you know, like a castle. Mom said there would be castles around here.” Kira stares at the tower, tugging off her mittens.
“Not here, Kiki,” I tell her. “She just meant in England.”
Her grey eyes narrow. “She said here.”
“I’ll show you a castle,” Aunt Irene says. “In the summer we can all go to Warwickshire. There’s a proper castle near where your cousins live, much older. The cement works was built in the twenties.” She grins at me conspiratorially. I like her like this.
If Mom’s around Aunt Irene is different, more careful—with Kira especially. I don’t think she’s used to kids anymore. Before Kira was born, she took a sabbatical year in Toronto and she visited us all the time. I still remember her distracted kindness, the beat-up guitar she gave me when she thought I might be musical, her encouragement even when the lessons didn’t take. She was always reading, and she infected me with her love of stories. If she was sitting at the breakfast table she’d read the ingredients on the Rice Krispies box aloud. It used to drive Dad crazy.
I keep quiet. I love the smell of damp stones and moss, the minty musk of nettles. Ivy crawls over every surface, trees and fences and brickwork. All these houses will disappear eventually and no one will miss them. For some reason it feels good to me, being in a place so close to being forgotten.
“Promise?”
A horn from a distant riverboat sounds and all at once the sky is filled with birds.
“Starlings,” Aunt Irene cries out. “Look!”
They take to the air making a fantastic noise. Where did they come from? I hadn’t seen them on the trees, or I hadn’t understood what they were. Just leaves, dead things.
Kira fumbles for my hand. There are moments like this when everything feels the way it used to. I glance at her and she smiles, a brief resurgence of her old self. The strange look in her eyes is gone and I wonder if maybe I imagined it. Still, she’s pale and a blue vein glows at her temple.
“Hey now, kiddo.” I give her hand a squeeze. “How’re you holding up?”
Her eyes are still fixed on the birds, watching the flock twist itself into complicated patterns and ghostly shapes, almost recognizable.
“Maybe it’s time to go home,” she says.
Home. I wish it were as easy as that.
It’s just past five when Aunt Irene pulls her Renault into the driveway. Her house—our house—stands at the eastern edge of Osney, a wedge of barely-island just outside Oxford town, circled by the Thames and its offshoot tributaries. The river footpath runs along the side of the house to the southeast, criss-crossing the waterways down to Christ Church Meadow, a popular gathering place for the students from the Colleges.
Kira’s nodded off in the back seat. She only stirs a little when Aunt Irene opens the door and unbuckles her.
“Want me to carry you upstairs?” She’s too big but I ask anyway, backsliding into how it was between us when she was younger. All the medical tests and treatments have made her wary of being touched.
“I can walk,” she yawns.
Where the Thames flows past the house, thickset men in fluorescent vests are laying sandbags down in case of another storm. “Hullo, my duck!” one of them says to Kira, his vowels slippery and rolling. She smiles shyly and offers a little wave.
“Will we sound like that one day, Soff” she murmurs to me as Aunt Irene fiddles with the keys on the step. Kira tries on their accent: “Hulloo, me durrck!”
“Maybe. Would you want that?” Mom’s already got a lilt in her voice I don’t recognize. She’s starting to sound more and more like Aunt Irene, which I guess is how she used to sound before she moved to Toronto before I was born.
“Nuh-uh. No way.”
Inside we all struggle to find somewhere to dump our things. There are coats and backpacks hung on the knob of the banister or piled with the muddy boots next to the front door. Aunt Irene wasn’t used to having company much before us. So many things are broken in the house: the kitchen clock, half the electrical sockets. The lower right-hand corner of my bedroom window has a thick crack running through it that lets in the cold. “That’s just how it is here,” Mom says if I complain. In Toronto Dad wanted our home to be immaculate. But I like how this place seems to say, “There are more important things to be worrying about.”
Mom appears in the doorway to the kitchen. “How was it?” She looks worn down, but weirdly it makes her seem more glamorous. She has the striking features you see in certain old paintings, cheekbones made for candlelight, her hair a shade darker than mine, chocolate with hints of copper. She’s beautiful in a way that makes it difficult for people to like her, the wrong combination of fragility and hardness. But where Mom is lithe and elegant I take after Aunt Irene: square, compact shoulders and narrow hips.
“Okay,” I tell her, “but there was—”
“Nothing happened.” Kira’s glaring at me. I decide to hold off until she’s out of earshot.
“How was the Centre? Any news, Char?” Aunt Irene asks as she steps out of her mud-splattered boots.
Kira rolls her eyes. She hates people talking about her. “Going upstairs,” she announces and clumps her way up to our bedroom. We share a big room upstairs, a barely insulated extension over the garage that Aunt Irene was using as an office before we arrived. My bed is mounted on an interior balcony I have to climb a ladder to reach while Kira’s is tucked underneath, an old wire-framed twin that looks like it came from a charity shop.
Mom shrugs and makes a sign for us both to come into the kitchen where Kira won’t hear. “Nothing definitive. Not yet anyway. But Dr. Varghese wants to meet with Sophie after we visit Cherwell College tomorrow.” She glances over at me. “Would you mind terribly, Feef? She says it might help for the two of you to get to know each other.”
“Whatever’s best.” I hate visiting hospitals but I know it’ll be easier on Mom if I suck it up.
“Good girl.” Mom kisses the top of my head.
***
Aunt Irene offers to work from home the next day so she can watch Kira while Mom drives me around.
“Most of the students in Cherwell College will be ahead of you,” explains one of the teachers, Mr. Coomes, for the umpteenth time in my interview. “You’ll have to work hard if you want to catch up.” He has sharply parted hair, glossy black streaked with white like a badger’s. He reminds me of the men from Dad’s office: that clipped way of speaking, the musky smell of cologne.
I grit my teeth and smile for him. “I know. But I don’t mind the challenge.”
Mom’s quick to say how smart I am, how she doesn’t think I’ll have any difficulty with the reading load. He quirks an eyebrow at me and all I can do is nod while he shows us around. We brush past a group of uniformed girls my age who glance at me without interest. They look identical: red lipstick and too-heavy mascara. Like old-fashioned pin-up models.
Pod people, Jaina used to call kids like that.
When the tour is over Mr. Coomes hesitates before taking my outstretched hand.
“I do hope your sister feels better. Our Centre, I hear, is very good for people with her condition.” Our situation was explained before we arrived, offered as a kind of apology. I’m getting used to it. Before I can respond Mom’s taking the registration forms from him and hurrying me out into the parking lot.
“God, what an ass. I forgot how condescending people can be over here,” she says when we’re back in the car.
“He was all right.” It’s the fourth place we’ve been to but the only one willing to take me at short notice. If I don’t start now I won’t be able to take the exams in the spring and that could mean putting off university for a whole year.
“You could imagine going there?”
“The other students seemed nice,” I lie.
“There are other schools in some of the nearby towns that might have spaces open…”
“We can register tomorrow,” I tell her.
We head west along the high street, passing Brasenose College and the heavy iron gates of the exam schools. As I watch a gaggle of the older students heading toward the Bodleian Library, I feel a twinge of envy. I want that to be me next year.
***
Perched at the top of Headington Hill sits the John Radcliffe Hospital, a massive complex of grey brick and glass.
“Last stop, I promise,” says Mom as she leads me toward one of the side entrances. “We won’t be long.” From the parking lot I have a stellar view of Oxford. I can make out the spires of the Colleges in the distance to the southwest. To the north is a load of prefab pop-up wards, and beyond that, the countryside, rolling hills sketched out in yellowy green and brown.
This is the part of the day I’ve been dreading. Mom and Kira have been here once a week since we moved back in December but it’s my first visit. I wouldn’t have come if I had a choice.
The hospital has chipped blue-green walls that make you feel like you’re underwater, slightly rubberized flooring that turns your footsteps noiseless. The same depressing aura as hospitals we’d been to in Toronto. The JI2 Centre’s new wing is an annexation of the old blood donor ward. They haven’t taken down the old signs. There’s something desperate about the whole operation. All the on-duty nurses have the same burnt-out look, as if they’ve been running triple shifts. There are loads of volunteers in dark blue smocks and posters asking for more to help out at all hours.
“Something wrong?” Mom asks me.
“I guess I thought it’d be shiny and new. Space-aged.” I try not to let me disappointment show.
“They’re really good with Kira, you’ll see—and they’ve just opened a new set of wards.”
Knowing they’re expanding doesn’t calm the swimmy feeling in my stomach. It just means they haven’t found a solution yet and more kids are getting sick.
“Come on you, Dr. Varghese is waiting.”
We check in at reception and find the office we’re looking for, and a slight, dark-haired woman answers Mom’s knock. Back home I got used to meeting different kinds of doctors: the chummy ones who pretended I was their best friend, the sympathetic ones, and the ones so focused on Kira they barely saw me. I try to size up Dr. Varghese but she doesn’t match any of these. For one, she’s a good six inches shorter than I am and maybe ten years older. So, young for a doctor, and pretty too. She looks me in the eye when she introduces herself. “You must be Sophie. You know you have your mother’s eyes, you and Kira both. But then you must be used to hearing that!”
She offers us seats in her office. The room is spare except for a couple of framed photographs.
“Your mother and I thought it would be a good idea for us to meet properly. I’m your sister’s clinician—her primary carer here at the Centre. I know this must be stressful for you.”
“She’s been managing it really well, haven’t you, Feef?” Mom chimes in.
Dr. Varghese smiles. “Let’s start with what you know about your sister’s condition.”
I rap my fingers against my knee. “I know something’s wrong with her immune system. That she gets sleepy more easily and restless sometimes. That if she gets sick then JI2 can make it much worse.”
“That’s the gist of it. It took us a while to identify Juvenile Idiopathic Immunodeficiency Syndrome as a single condition because the first cases presented in different ways, as clusters of seemingly unconnected symptoms. ‘Immunodeficiency’ means the body doesn’t fight diseases and infections the way it’s supposed to, so sometimes blood doesn’t clot properly or the immune system can attack healthy cells. Health problems—even common ones—can be much more dangerous.”
“I still don’t understand what’s causing it.”
“That’s what ‘idiopathic’ means. It doesn’t seem to be a virus or a bacterium.”
“I’ve heard it’s spreading though.”
Dr. Varghese sucks in a breath. “Yes, well, that’s true. Over thirty thousand cases have been documented in Britain alone.” Mom’s eyes widen. It’s more than either of us had heard.
“What are the recovery rates?” I’m testing her. No one’s given me a straight answer so far.
“It’s too early to tell.”
I grimace.
“Patients with the condition have a statistically higher rate of mortality within the first four months of diagnosis but—listen, Sophie, the numbers never tell the whole story. They aren’t a prediction. And we’ve made some major breakthroughs in the last few weeks.”
“Like what?” I’ve read dozens of online summaries that all say the same thing: we don’t know what it is. But Dr. Varghese surprises me again. While Mom listens, nodding from time to time, she explains to me that they’ve identified a special hormone in the bloodstream of patients like Kira. “It seems to be manufactured by the thyroid, we think, in addition to thyroxin, which plays an important role in all sorts of body functions, like digestion and brain development and bone growth. The hormone interferes in some of those processes. It can disrupt body temperature, blood pressure and clotting, which is one of the reasons your sister’s immune system is compromised.” When she sees the look on my face she changes tack. “We call it a ‘juvenile’ syndrome because it only seems to affect young people. We suspect it has something to do with the changes the body goes through in puberty.”
“I’ve heard of kids older than me getting it.”
“Most of the changes in your body are over by the time you’re seventeen or eighteen but some go on after that. The prefrontal cortex, which handles all sorts of complex processes like reasoning and memory, continues to develop into your early twenties.”
“So Kira may grow out of it?” I ask hopefully.
Mom squeezes my hand again but Dr. Varghese’s smile is restrained. “We think so. But with your mother’s help—and yours as well—her condition should be manageable.”
She stands and walks toward a large cabinet and she comes back with a small plastic device that looks like a tuning fork with a screen on it. “This is a HemaPen. It’s based on insulin monitors so it’s non-invasive. We’ll use it to track Kira’s hormone levels.”